Monday, September 26, 2011

More Medication Changes

I spoke with Raquel's neurologist this afternoon. He obviously wasn't happy with what I was reporting, and feels that Keppra is no longer working at its full effect due to the increase in Raquel's seizure activity in such a short amount of time. Because of this, Dr. Mower put in the order for another anti-convulsant called Banzel. Side effects are like Keppra - on the light side - and nothing that should put her back in the emergency room for a week like we experienced with Lamictal a few months back.

The reason he wants to add this new medication instead of waiting until after the Ketogenic Diet is implemented next month, is because he says that the diet can take several weeks before changes are noticeable, and he did not feel, because of such an increase and them occuring out of nowhere (not just when she's stressed or overly tired anymore), this was the route to go. If we feel she is responding well to the diet, Banzel will be the first drug to be removed.

I was also instructed by Dr. Mower that if more head drop seizures occur, and are frequent like they were in the car the other day, I need to immediately give her the high dose of valium and to treat these exactly like I would if she was having "cluster" seizures.

In the meantime, since she'll be on the Low Glycemic Index Treatment diet to start with, I'm going to start removing the bad carbs she's been consuming, and replace them with gluten free comparable items. There are so many more products readily available now than when Raquel was previously on the GFCF diet, this will be much easier to do.

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