I spoke with Vanessa, our Ketogenic Diet nutritionist, and have scheduled an initial appointment with her for October 19th. This will be a 2 hour appointment and Raquel is required to be there so she can evaluate her. She has also asked me to read a book (I already bought it), and search several websites and blogs that she gave me to familiarize myself with the diet more.
Based on our conversation and the questions I've answered, she is initially suggesting that we implement a Low Glycemic Index Treatment (LCIT) form of the Keto Diet, which she said is the least restrictive. She recommended LCIT mostly because Raquel isn't having seizures multiple times per day and thought we should start at the lower end of the diet which allows for more carbs.
She did say that she has treated all kinds of kids, some who didn't respond well to the Keto Diet, that developed behaviors, regressed, etc., to others who are completely off all medications and have been medication and seizure free for years. She said this is completely an individual thing and requests that we consistently stay on the diet for 3 months. At that point, she (we) will be able to tell if it's working or not. After 3 months, if we feel she is adjusting to the diet, meds will start being reduced and we go from there.
Obviously, I will get a bunch more info about the process come October 19th. In the meantime, I'll keep everything as is diet and medication wise, and start doing my homework.
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