Tuesday, June 15, 2010

Liquid Meds Are A Good Thing

After continuing to struggle getting full doses of the medication in Raquel, I, again, called the neurologist for some much needed support. Conversations with Dr. Mower seem to be on a weekly basis at this point. I'm very fortunate to have him so readily available.

I was actually nervous about having our most recent phone call because I've spoken with him so much since the ER visit and thought he would more than likely suggest changing the medication. Instead, he put in the order to try her on a liquid form of Depakote - something I didn't even know existed. I started giving her this last Friday and have to say that it is so much easier than the capsules. Even though it requires her to have one extra dose a day, each dose is only 1/2 of a teaspoon - something easily given by spoon in one gulp. I no longer question whether or not she's gotten her full dose. And the other day while shopping at Trader Joe's, one of their employees came up to me and commented on how great she looked. It's nice getting feedback from people that not only know what is going on for her but also see her on a somewhat regular basis and can notice the subtle changes.

Here are a couple pictures taken on Sunday. Mike thinks that every 4-year old girl needs to cruise around in a '56 Cadillac convertible.





She obviously agrees.

And here they are eating raspberries in our neighbor's yard. I swear we live next door to our very own farmer's market!







Next on the agenda is our neurology follow-up on the 21st. The 24-hour inpatient video EEG at Children's Hospital has been scheduled for August 16th, but at this point, I'm not sure Dr. Mower will want us to do this until her medication levels are stable for quite some time. I guess I'll find out next Tuesday.

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