Blood Work Complete

I finally got a call back from one of the neurologists and was told I could go to the lab and have the blood work done before her first dose instead of before the second. I went yesterday morning, and was fortunate that the lab was open even though it technically was a holiday. And even more fortunate was that only one other family was there when we arrived, and they were just finishing up. I literally signed in, answered a couple of questions, and was called before I could even take a seat.

I'm a wimp when it comes to having blood drawn from Raquel and struggle with holding her down. I have to be the bad guy enough just giving her the meds 3 times a day! They obviously noticed my hesitation and said I could wait outside, which I gladly did. After a few moments of hearing her cry, out she came with a Care Bear band aid on her arm, and she reached out for me as soon as she saw me. Mission accomplished.

I did forget about Dr. Mower requesting a urine sample as well, and she was not cooperating in that regard due to lack of fluid consumption. Now I have to collect the sample myself and then drive it back to the lab within 2 hours. Once that is done, all tests are complete until the EEG in August.

I did get info regarding the 24-hour inpatient video EEG thing. It really doesn't sound like too much fun. I have to keep her up until midnight the night before, then wake her up at 4am and keep her awake until we check in at 9:15am. And no sleeping in the car on the way down there. Once there, we have to take the shuttle to the EEG building, get the thing strapped to her head (with only 4 hours of sleep in her), and then I guess get placed in a room where she can be monitored for the next 24 hours. Good times. Hopefully I'll get a bed, too.