Dealing With The EEG

Earlier today, I took Raquel to Children's Hospital to have the EEG put on. I've got to say that Raquel is such a trooper. She didn't even make a fuss and the technicians/nurses raved about how cooperative she was throughout the procedure. It probably took about 30 minutes to get it completely set up.

Here's Gabby being the best big sister ever and feeding Raquel some yogurt - with Kermit the Frog watching, of course. At Children's, it's definitely all about the kids.



We were the only ones in the waiting room and they took us in just as soon as we arrived. Raquel was wrapped tightly in a sheet to prevent her from moving, then the electrodes got placed all over her head.





Once that was done, her head was wrapped in gauze, then covered by a princess hat, then covered by a gauze helmet. I was concerned that Raqi would be able to take them right off, but no such thing. She has to get through 3 layers before she could even start messing with the electrodes.



She was given a backpack to wear that carries the device that monitors the electrode activity. I have to record things that happen with Raquel (ie. when she eats, sleeps, tantrums, etc.) in a log sheet, which I turn in tomorrow. The first entry is: "Time = 13:20. Mom dropped device by accident - HARD." Not really how I wanted to start it out but it is what it is...



I am amazed at how she is leaving her head alone. And the weighted backpack brings back a lot of Karin/Occupational Therapy memories when we were trying to find something like this to help her sensory issues.

But, if she was blue, she'd definitely look like a Smurf...



And Mike didn't know what to say when he first saw her...



The hardest thing so far - besides her not being able to have her beloved bath tonight - is having to watch her sleep to make sure she doesn't get the cord wrapped around her, which basically means no sleep for me. I'm just thankful this is nearly over and probably the last test she'll be needing for awhile.

On a school note, she's now throwing for the Coach, being very non-compliant with the speech therapist (she had to be removed from therapy because they were "not getting along"), and continues to make progress in class, which is a wonderful thing. I'm even seriously contemplating putting her on the bus.

Glad this is almost behind us. The EEG results take about two weeks, then it's back to the neurologist for a follow up.